My son was born with Spina Bifida, hydrocephalus, and Chiari malformation. So it is important to us to continue to educate our friends and family how hydrocephalus affects our family. It’s not something that a simple surgery can fix. For us and every other family out there, it’s a way of life.

I want to share with you some important facts concerning hydrocephalus. I also want to highlight that this information was found from the Hydrocephalus Association’s website.

I did not come up with these facts on my own. But I felt they were worth repeating. So please share this information with your family and friends.

By raising awareness we can encourage others to fight for better treatments and hopefully, one day, a cure.

Did you know…

• 1 out of 770 babies will develop hydrocephalus. This makes it as common as Down’s syndrome and more common than spina bifida or brain tumors.
• The core technology used to develop the shunt has not changed significantly since the 1950’s!!
• Hydrocephalus is the leading cause of brain surgery in children.
• Hydrocephalus is a life threatening condition that affects approximately 1 million Americans. (I wonder what those numbers are for under-developed countries?)
• An estimated 50% of shunts fail within the first 2 years in children. This required yet another brain surgery!
• Over 36,000 shunt surgeries are performed each year (one every 15 minutes) and more than half of them represent emergencies.
• Anyone at any age can develop hydrocephalus.
• There are approximately 10,000 pediatric hospital admissions for shunt malfunctions each year.
• The most common surgical treatment for hydrocephalus is a shunt. This device is placed in the brain to drain excess fluid away from the brain and to decrease pressure.
• Hospital charges for hydrocephalus are over $2 billion per year!
• There is no way to prevent hydrocephalus. There is no cure. The only known treatment requires brain surgery.
• Hydrocephalus and a shunt can mean a lifetime of multiple brain surgeries. Dozens of brain surgeries are common.
• Nearly 40% of infants diagnosed with hydrocephalus develop behavioral issues and 20% will develop autism.
• Pediatric hydrocephalus alone accounts for more than 40,000 hospital admissions each year (433,000 hospital days.)
• 80% of Spina Bifida children also have hydrocephalus.
• The Hydrocephalus Association is the largest private funder of hydrocephalus research in the U.S.
• There are currently 10 drugs in testing to prevent, treat, or manage hydrocephalus.
• Hydrocephalus Association funded research has reduced shunt infections by 36%.

What You Can Do to Raise Awareness

Were any of these facts surprising to you? Then share it with your friends on social media. Visit Hydrocephalus Association’s website and share one of their social media graphics.

Continue to fight for the services your child needs to succeed in learning and growing. That may be therapy services, IEP’s or other forms of help for school, or for medical services provided by doctors.

By continuing to fight for the services that our children need, we are raising awareness about how hydrocephalus affects every part of life. If we don’t fight for our children to receive the care and support they need, no one else will.

Resources:

20 Powerful Facts About Hydrocephalus

Hydrocephalus in Babies

The post September is Hydrocephalus Awareness Month appeared first on Breaking the Confines.

For most of us, it’s a struggle to make it a habit to take time for self-care. For me as a stay-at-home mom, it’s even harder than when I worked outside the home.

Before I had the use of paid time off from work and childcare that was already paid for. So if I need a little retail therapy time, I could do that. When I had a whole day off from work during the week, it was usually spent cleaning my house at my leisure (fun times, I know. But there was satisfaction in doing the work).

Now that I stay home with my kids, finding alone time for any length of time seems impossible unless I stay up late while everyone else is asleep. But then I’m sacrificing sleep for alone time. It’s a catch 22.

So instead, I’ve found some ways that we as in-demand moms can sneak in some precious “me time” even if it’s just a few minutes here and there all without having to live our homes.

Before we begin I want to point out the biggest issue with self-care. And that is mindset.

The main thing to remember is that your mindset has A LOT to do with your self-care.

Our thoughts rule the world. Ok, maybe not literally the WORLD but definitely our own little world.

So, if we can start controlling our thoughts with more purpose, then we’ve won the battle against mom-guilt, depression, anxiety, and fear of failing at this mom job.

It’s a battle that has to be won on a daily basis. And some days more like on a minute-to-minute basis when those pesky hormones are trying to have their way.

So if you can find ways to manage your thoughts and put those into practice that’s one of the most important self-care techniques I want to offer to you today. I’ve included several ideas below. Find one that resonates with you and really hone in on it.

Looking for some quick and easy ways to find some momME time? Well, I’ve got you covered!

Some of these self-care ideas for moms will only take a few minutes which is what most of us have throughout the day. Other self-care ideas will require more planned time but are guaranteed to make you feel good about yourself.

You may already be doing some of these and not realize it, but let’s look at why these ideas are beneficial to your self-care as a mom.

Take a Nap!

I know what you’re thinking. “Come on, Heather, be realistic. Who has time for a nap?”

I get it. There’s too much to do and who’s gonna what the kids? Well, I’m not suggesting a two-hour nap but if you can, do it!

But can you sneak it maybe 15-20 minutes of a snooze while the baby naps, or while your toddler is watching the same Blippi episode for the 100th time?

Even just 20 minutes of a nap has been proven to boost your energy and mental status.

Read a Good Book

When’s the last time you read a book instead of scrolling Instagram or Facebook?

Make it a goal to get through one or two books in a month. Then squeeze in five or ten minutes of reading time early in the morning before the kids get up.

I also find reading a great way to unwind from the day to help me fall asleep when my mind is racing about what I didn’t get done that day, the current state of the world, how I’m ruining my kids’ lives… you get the idea.

Watch Netflix

Need to escape reality for an hour or five? Yes, sometimes self-care for moms is putting in the earbuds and binge watching Gilmore Girls while the kids are close by watching their own shows or playing games.

Catch Up With a Friend by Phone

I don’t know about you but it seems I talk less to my friends now than before there was social media.

And I don’t mean texting. I mean having an hour long phone call catching up on each other’s lives.

It really does a soul good to hear from a friend.

When you both have kids, planning a girls day out is pretty much impossible.

But nothing says you can’t plan a phone date! Kids in bed? Time for some fireside chit chat by phone! Heck to make it even more fun do it by Facetime!

You could plan a monthly phone date and know that you have set aside some “ME” time and you have something to look forward to each month.

Go For a Walk Around the Neighborhood

A hearty walk around the block a few times is a great stress reliever and gives you an instant boost of endorphines making you feel great.

It’s also great feeling knowing you have accomplished something and got some exercise in the process!

Do Yoga with Adriene on YouTube

I kid you not. Just go and do it. Click the link above. You can thank me later.

Take an Epsom Salt Bath

Epsom salt baths are a great stress reliever, but it also helps with sore muscles, stiff joints, and inflammation.

It can help to get rid of toxins and heavy metals. Epsom salt baths helps to improve your mood and promotes relaxation by restoring your magnesium levels.

It can also help with dry skin making you look and feel more radiate! Here’s a great article on the benefits and how to take an Epsom salt bath.

And here’s another great article covering the benefits and uses of Epsom salt. Give it a try today!

Shop Online

So I just experienced shopping with a three year old yesterday for the hundreth time. Oh, how quickly we forget.

You think, “Aw, this won’t be so bad. It will be a fun outing since it’s been a while that we’ve been out and about.” WRONG! It was so stressful! We didn’t last but ten minutes in the second store before a meltdown happened.

Moral of the story? Shop online as much as possible! It’s actually so much more freeing.

I’m not one to jump on trends all that quickly. So it took me a while to give the grocery pick up a try at Walmart. It is definitely life changing and actually saves me money each month because I’m not seeing all the extra goodies that I didn’t have on my list but feel I must have!

Shopping online can give you a mental boost when you’re stuck at home with kiddos. And it gives you something to look forward to by mail instead of always just getting junk mail and bills. Bleh.

Sit Outside With a Cup of Coffee/Tea/Favorite Beverage

Ahh, I love this one. It’s even better if it done while sitting on a swing or a rocking chair.

Taking a few minutes to breathe in some fresh air and sipping on your favorite drink is heavenly.

It’s also a great way to spend a few minutes with the hubs and enjoy each other’s company.

Meditate

I admit this one is a bit hard for me. Making my mind be still is like herding cats. But I know the benefits are healthy so I’ll keep trying.

If you’re new to this kind of thing, here’s a quick article on how to meditate and the benefits of it.

If this idea of meditate seems uncomfortable and foreign to you, the book of Psalms is littered with the word.

As Christians we are to meditate on God’s word daily. “Blessed is the man who walks not in the counsel of the wicked, nor stands in the way of sinners, nor sits in the seat of scoffers; but his delight is in the law of the Lord, and on his law he meditates day and night.” Psalm 1:1-2

Pray

Feeling stressed? Pray. Feeling anxious? Pray. Full of worry and self-doubt? Pray.

1 Thessalonians 5:17 says, “Pray without ceasing.”

One of the best ways to do self-care is to pray to the One who knows us better than we know ourselves. Connect with Him and let his peace comfort you.

Journal

Take some time to journal about what’s going on in your life right now.

Or write a journal that you can leave for your children to read when they are older. Write down all the things you want them to know about life, how to live, your desires for their lives.

Or write down things they did when they were little or things you did together so they can remember the fun times you had.

Start a Gratitude List

Ann Voskamp is famously know for her book One Thousand Gifts (highly recommended).

The dare is to find one thousand things to be grateful for. Once you’ve reach that then start over again because you can never run out of things to be grateful for.

If you need some prompting, she has a great free resource for you called Joy Dare. Try it today!

Eat Chocolate

Yes, I give you permission to indulge in whatever form of guilty pleasure you prefer in chocolate form!

Sometimes it’s a matter of staying sane in the midst of chaos and momma needs this for survival. So it’s totally for health reasons that I recommend this.

Drink Hot Cocoa

Drinking hot cocoa is like getting a warm hug. I like to make it from scratch to avoid all the unnecessary ingredients in packaged hot cocoa.

This is a super easy recipe that everyone in my house loves. We use way more maple syrup though to get the right amount of sweetness.

Relax by Your Oil Machine

I got into using essential oils in 2015 and I haven’t stopped! My daughter has her own oil machine that she uses every night to help her sleep.

There’s a bit of a learning curve to using essential oils but don’t let that stop you from trying. The biggest things to remember is to use quality oils and know which ones need to be diluted before applying them to your skin.

When it comes to applying it to kiddos, dilute more than you would for yourself.

Using an oil machine is healthier than burning candles if you’re wanting to add a smell to your house. Lavendar is a great oil to use to relax with. Give it a try and let me know how it goes!

Sit Alone in Silence

It’s a hard task, but I dare you to try it.

In the wee hours of the morning or late at night, when all is calm in your house, sit in complete silence and… do nothing. Well, maybe do some deep breathing while you’re at it. But the point is to find the joy in sitting in the stillness.

“Be still, and know that I am God.” Psalm 46:10

Listen for the voice of God in your time of silence.

Listen to a Podcast

I know there are a ton of podcasts that are great for moms but one of my favorites that gets me in a positive mindset is Quote of the Day by Sean Croxton. I love it because I can get motivated and encouraged in 10-20 minutes a day which is about all the time I have for listening to a podcast.

Let us know what’s your favorite podcast in the comments!

Munch on Veggies and Hummus

By the way have you tried the chocolate hummus? OMG! Deliciousness wrap up in a healthy little snack. Perfect for picky eaters, too!

Take 5-10 Deep Breaths

Do it right now. Take 5 deep breaths and see if you don’t feel instantly better! Deep breathing is an easy way to detox the body, release stress, regulate your heart rate, and so much more.

Do a Word Search Puzzle

There’s something satisfying about finding words in a puzzle and then crossing off the word.

It’s like a visual checklist that you get to check off quickly and feel like you’ve accomplished something that day.

Visualize Your Wants/Needs

I admit I’m not great with this one. But it’s something I hear often from those who are successful in their goals. The first step in reaching a goal or fulfilling a need is to visualize in your mind what it is like to already have accomplished the goal or have the need met.

For example, we all want to be more calm and patient mothers.

So each day first thing in the morning picture yourself being calm throughout the day with your children. Do this each morning and see how much more calm you become in the weeks ahead!

Speak Affirmations

Along with visualization is speaking positive statements to help with your mindset.

This can be done at any time of the day.

Write down a few positive statements that you want to focus on for the month and put them in places that you will see everyday. When you’re feeling stressed look at one of your affirmations and say it out loud.

This is a great way to train your brain to focus on the positive and not dwell on negative thoughts.

Memorize a Scripture Verse

If the idea of speaking affirmations is not your thing, then try memorizing a few scripture verses and speaking them out loud each day.

You will be proclaiming God’s word into your life and speaking positive words over your situation.

Get Crafty

Get a boost of confidence by putting on your crafty hat and getting creative.

If you’re not sure what to create, look on Pinterest for ideas or take an online class. You may be able to find some classes for free. I know that there are a few places to take free painting classes on Facebook.

Roll a Ball Under Your Feet

Got a quick minute to relieve some stress? Find one of your kid’s balls and roll it under your feet for an instant foot massage!

Stretch Your Legs and Back

Feeling tense from the day? Take a couple of minutes to do a few back and leg stretches.

Downward dog anyone?

My favorite way to stretch my back is to bend over letting my neck and head dangle while holding my arms criss cross. This is a great way to stretch those lower back muscles.

Find a couple of easy stretches that you can do mid-day to get a quick release of stress.

Massage Your Head

It’s not the same as someone else massaging your head but there’s something about putting a little pressure on your head that releases tension and give you a release of endorphines.

Stand in the Sunshine

Most of us are deficient in Vitamin D. There’s nothing easier than just standing in the sunshine to get the amount of Vitamin D that you need.

Play in the Dirt

Plant some flowers. Plant a garden. Or just dig in the dirt just for the sake of connecting with mother nature.

Stare Out Your Window

I do this a lot when I’m feeling overwhelmed.

It’s calming to stare out at nature or to check out what’s going on in the neighborhood.

It gives your brain a break from the chaos that’s going on inside your house or even in your own head!

Try a New Hobby (Learn Something New)

It’s never too late to learn something new. Find something that you think would be calming to learn like crocheting or taking an art class and go for it!

Declutter One Area of Your House

If the idea of this makes you hyperventilate, just start with one small area like a drawer. Don’t try to tackle a whole room.

Sometimes self-care is cleaning out the kitchen drawer that ends up being the catch-all for e-v-e-r-y-t-h-i-n-g.

Or maybe you just need to clean off the kitchen counters. Doesn’t it seem like a magnet for all the things?

Taking a few minutes out of your day to declutter a small space is like a breath of fresh air once the job is done.

Dance It Out!

Turn on some music and feel the beat! This is a great stress reliever and you’re getting some exercise in. It’s a win-win!

Put on Some Music

Not in the mood for dancing? Put on some music anyway. Maybe a little instrumental music plays in the background while you’re doing housework.

Get Your Laugh On

One of the best ways to relieve stress is by laughing. Find something funny on tv or the internet and laugh until you cry.

Cuddle with a Pet

Grab your pet and give it some lovin.

Color

I’m so glad adult coloring is a thing now. I think I enjoy it more now than as a kid. It gives a feeling of satisfaction and it has a calming affect.

Bake Your Favorite Food

Bake your favorite cookies or bread. Whatever makes you feel good inside, bake it.

Look at the Stars

One of my favorite things to do as a kid was to look at the stars and watch for falling stars.

Any chance I could get to make a wish I would go for it. It’s been a while since I’ve seen a falling star. It’s about time to go looking for some wishes. How about you?

Sit on a Swing

Swings have this magical thing about them.

Whether it’s a porch swing that’s for two, a tire swing, or one of those at the park, they transport you back in time to feeling like a younger version of yourself.

You feel childlike and free from worries. Give it a try and tell me how you felt!

Rock in a Rocking Chair

No swing nearby? Then a rocking chair will do, too. It’s that soothing motion of back and forth that has such a calming affect.

Rock those worries away, Momma!

Watch Home Videos

Some of the best ways to get in a good laugh (or cry) is to watch old home videos.

Spend some time reminiscing about the good ol’ days and you’ll start to feel grateful for the beautiful life you have.

Reminisce with Photos

Reflecting on your past with photos is a great way to remember how far you’ve come and all that you have to be thankful for.

Look through past photos and remind yourself of how strong and resilient you are. You are a brave and resourceful woman!

Do Some People Watching

This is not meant to sound creepy. But there’s something relaxing about sitting and watching others go about their business.

Maybe it’s watching the neighborhood kids playing in their backyard or a friendly neighbor walking her dog.

Whatever the case may be, take a small break from your own world and look around you.

Appreciate humanity in its simplest form; the act of playing in children, or your neighbor getting some exercise in by walking a pet.

Take a Hot Shower

Taking a hot shower is a great way to unwind from the stresses of the day.

It’s also a great way to wake up in the mornings and prepare your mind and body for the day ahead.

Talk it Out What’s Bothering You

As women we take on way more things than we should.

We take on more household responsibilities, more work responsibilities, and more guilt because we are not doing a perfect job at managing ALL THE THINGS.

Sometimes it’s hard to pinpoint what it is that’s bothering us because there’s so much going on in our lives. That’s why it’s important that we talk it out what’s bothering us so we can truly pinpoint the problem and the solution.

Listen to Sounds of Nature

Nowadays all we have to do is type up “sounds of nature” and we can listen to birds singing, rainfall, or the sounds of the forest.

If getting outside and listening to the real thing is not possible because neighbor Joe decided to mow again for the fifth day in a row, then listening to it by phone will still sound like the real thing and help you to relax.

Lay in a Hammock

Another great way to be in nature but be totally relaxed… until the three year old finds you.

Watch Bob Ross Paint

With Bob Ross’s soothing voice and ease of using a paintbrush, he instantly puts you into a trance where all you can do is just focus on his voice and the beautiful picture he is painting.

Even my three year old loves Bob Ross, so he’s toddler approved!

Play a Musical Instrument

Play a musical instrument even if it’s a toy instrument. It will lighten your mood and has a way of releasing endorphins to help you feel better.

Paint or Draw

Painting could be spray painting an outdoor bench, flower pot, or anything that needs a pop of color.

Drawing not your favorite? Create a design with painting tape on your driveway and color it in with sidewalk chalk.

Better yet, create the design then have your kids color it in. This will give you a few moments to sit back and relax.

Crochet/Knit

For some this is a way to relax while being creative.

For others, like me, this is a way to stress out and get really frustrated. But that’s probably because I don’t practice enough.

It is rewarding when the project is done and gives a boost of confidence that you can do hard things.

Get Grounded – Walk Barefoot Outside

If you’ve never heard of the term grounding, here’s a good article explaining what it is.

Grounding is a way to reconnect with God and His creation. Everything has a vibration and connecting with the earth’s vibration helps us to reduce stress, inflammation, and other health issues.

There are different techniques for grounding such as walking barefoot outside, lying in the grass, taking a hike in the woods, hugging a tree, standing in the rain, wading in a river, or swimming in the ocean.

Give it a try and see if you can feel a difference afterwards.

Reorganize a Space

Got five minutes? Start with your sock drawer and finally get rid of those mismatched socks that have been hanging around waiting for their long lost companion for way too long.

Or maybe it’s time to reorganize the pantry. If you’ve got kids, it’s likely you have empty boxes in your pantry that once held granola bars or fruit snacks.

Getting rid of what’s not needed will provide extra space and a fresh start for the next grocery pick up day.

Clean Out Your Clothes

I regularly go through my clothes and get rid of items that I haven’t worn in a year or more.

But one thing I recently heard that you should do is first take ALL your clothes out of your closet so that you can see an empty closet and feel how good it feels to have that cleaned out.

Then go through each piece of clothing to decide if you should keep it or not.

I always seem to like my clothes even more when I do this process because I know what I have in my closet makes me feel good to wear and I’m excited to pick out something pretty the next day.

Sing

Sing it out, girl! Feeling like you need to release some pint up frustration? Put on some good ol’ Kelly Clarkson or Adele and let it all hang out.

Or bring on some worship time while you clean the floors.

Whatever music you need, I’m sure your soul could use a break from Blippie and Daniel Tiger songs.

It’s your turn to pick the music, Momma!

Have a Girls Night In

Not feasible for you to have a girls night out? Then make it a girls night in!

When my husband used to work nights, my friend would come over after the kids were in bed and we would have girl time. Since her husband was home with their kids, she was able to come over for a few hours.

So much better than having to get dressed up, figure out where to eat, and what to do afterwards.

Bird Watch

This may sound like a really old person thing to say, but bird watching is now one of my favorite things to do.

It has a very calming affect watching these little creatures bounce around on the ground looking for food and watching them interact with one another.

Set 3 Month Goals/Plan It Out

There’s nothing more powerful than having some goals and a plan on how to reach those goals.

If you are needing a guide for this, I highly recommend Mia Moran at Plan Simple. She has the best planning worksheets that I’ve ever found and the way she teaches on how to plan is like a breath of fresh air.

She makes planning doable. She makes you look forward to working on your goals and not just staying stuck in the dreaming phase.

So set you some goals, Momma, and then make out a plan on how you will reach these 3 month goals. Make sure you check out Mia. She’s the best.

Give Yourself a Mani/Pedi

Have you looked at your nails lately?

Who has the time to spend at the nail salon when you’ve got little ones to take care of day in and day out? Not to mention the cost of having someone else do your nails.

Why not take some time to pamper yourself after a long bath and give your nails some love?

Retail stores have the cheap version of Color Street nails if you’re looking for something other than nail polish. And they stay on much longer than nail polish.

You will feel so much better about yourself by spending a little bit of time adding some color to your nails.

Take an Online Course – Learn a New Skill

Oh my goodness. The world is at your fingertips. Whatever you can think up that you want to learn, there’s a course for that.

And now, you can learn it on your own time, in your own home, and for peanuts compared to a college course. There are several different sites that host courses, but my two favorite platforms for courses are Udemy and Teachable.

And That’s a Wrap!

We’ve finally reached the end of the 61 self-care ideas for moms. I hope you are inspired to try something new. And I hope I’ve triggered your memory of something you used to love to do but forgot all about.

Have other ideas for self-care? Let me hear them! Let me know in the comments what your favorite momME time ideas are!

Don’t forget to download this list of ideas and hang it on your fridge. I’ve also included some affirmations in the printable that are just for you!

The post 61 Self-Care Ideas for Moms to Do at Home (FREE Printable List Included) appeared first on Breaking the Confines.

1. Send a “Thinking of You” card
2. Give a gift card
3. Make a meal
4. Invite them over for dinner and fellowship
5. Offer to babysit for a date night
6. Pray for their well being

Do you remember as a kid saying “Uncle” when you wanted your opponent to stop? Most of the time for me it was when I was being tickled by my dad or an uncle. For you it could have been a friendly game of wrestling.

According to Wikipedia, the response “Uncle” is the same as saying, “I give up!” It is a form of submission to the other person.

As I’ve gotten older, there have been plenty of times that I wish I could have said “Uncle” in this game of life.

We can’t wait to be a grown-up when we are kids, but honestly, life as a grown-up is HARD.

Our anticipation of Saturday morning cartoons has turned into Saturday morning house cleaning and laundry. Our lives have much bigger responsibilities that affect not only ourselves, but those tiny humans that we are raising. The stress can be overwhelming.

I think most of us are ready to say “Uncle” this year, too. 2020 has not been very kind to us.

I’m sure there have been certain years for you that seemed to keep delivering bad news.

That year for me was 2016. I had a miscarriage. My step-father was diagnosed with glioblastoma brain cancer that made him a person I no longer recognized. My husband had cervical spine surgery that left him out of work for two months. And after I became pregnant with my third child, we learned our son would be born with Spina Bifida and hydrocephalus.

I was ready to say “Uncle.”

But in the ashes there is beauty to be found. That year my husband and I grew closer to each other and to God. We learned the big lessons in life, like what was truly most important. For us that was God, family, church family, friends, and people being the hands and feet of Jesus when we could barely hold it together.

If you know of a family that has a special needs child, please know that even the smallest act of kindness would mean the world to them. 

Being the parent of a special needs child brings with it a whole new set of worries and anxiety. If you’re looking for ways to encourage a special needs family that is hurting, over-burdened, or feeling stressed about ALL THE THINGS, then here are six easy ways to spread the love of Christ.

1. Send a Thinking of You Card

If you know of a family going through a difficult time, send a thinking of you card to brighten their day. Better yet, have the people in your small group or Sunday school class send one as well.

What did that look like for us? Getting card after card each day from people hundreds of miles away just to say they were praying for us during our difficult time. People we had never met, but were willing to share their hearts and lives with us in hopes that it would ease our pain.

Most of the people at my job knew nothing of my miscarriage. Partly because I felt ashamed. Partly because I didn’t want any pity. I was in the midst of training and mentoring two people. Two weeks after my miscarriage one of the guys proudly announced his wife was having their third child. It was all I could do to hold it together. I was ready to say, “Uncle.”

But coming home every day to a mailbox filled with encouraging cards made the pain a little more bearable.

2. Give a Gift Card to Encourage a Special Needs Family

This can be for gas, a favorite restaurant, or retail store. Gas gift cards are great for families who have to drive a long way to doctor’s appointments or have frequent doctor visits.

Give a give card to one of their favorite restaurants. Every once in a while it’s nice to have the option to go out to eat as a family and not have to worry about the bill.

Restaurant gift cards are ideal for families that have a special needs child because they don’t always have extra money for such occasions. Most of the time that money is being used for doctor bills, therapies, special equipment, or medical supplies.

I think anyone would agree that Walmart or Target gift cards are always acceptable! Even something as small as a $5 gift card just shows you are thinking of that family and that you care.

It doesn’t take much to make others feel loved and you’ll be blessed by being a blessing to others.

3. Make a Meal for a Special Needs Family

I will be the first to admit that cooking for others stresses me out! This would not be the first thing I would pick from this list to do to offer support. But I know there are lots of other men and women out there that love to be in the kitchen. Why not spread that love to another home with a home-cooked meal? Or even a freshly baked dessert?

If you too are not one for making meals for others, another option could be to deliver carryout food. KFC or Popeye’s anyone? Or pick up a delicious baked good from the bakery at the grocery store and leave it on the front porch with a little “thinking of you” note for a special needs family.

Giving that special needs family a night of not having to cook or giving them a special little treat can be the pick me up that they are needing for that week.

4. Invite Them Over for Dinner and Fellowship

One thing that special needs families miss out on the most is fellowship.

Whether it’s due to the child’s needs or the parents’ lack of time (or energy if we’re being honest), getting together with friends and other like-minded adults is low on the list of things to do to maintain sanity and self-care.

Invite a special needs family over for dinner and just enjoy each others’ company. Don’t stress over what the meal will be. Order pizza or grill hamburgers and hot dogs and have a picnic outside.

Just the act of inviting a family over for a simple meal and some fellowship time will mean the world to them.

5. Offer to Babysit for a Date Night

Even lower on that list of things to do to maintain sanity and self-care is a date night for the couple of a special needs child. Especially if that child has certain medical needs that most people don’t know how to care for.

It never hurts to offer to babysit even if it’s just for an hour. If the child with special needs requires extra attention, don’t let that discourage you from offering even a small amount of time to give the parents a much needed break.

This will give them the quality time they need to build their marriage that will help them through the hard days of parenting.

6. Pray for Special Needs Families

The most important act of kindness that you can show to a family with a special needs child is prayer.

Pray for the family to stay together, and pray for everyone’s health and well being.

Pray for the special needs child to remain healthy, to reach his milestones, and to continue to improve in ways that are unexplainable.

Pray for the siblings to be loving care-takers and to be children that will honor God in all things.

Here is a list of 30 prayers for special needs parents who are looking to pray scripture over their problems.

What’s Your Preferred Choice to Encourage a Special Needs Family?

These are all great ways to support any family that may be going through difficult times, not just a special needs family. It just goes to show it doesn’t take a lot of money or time to help our friends and family. Anything done in love will bring encouragement to those you share your acts of kindness with.

Let me know in the comments what’s your preferred way of showing encouragement to others! If it’s not on this list, I’m sure it needs to be so share it with us. You can also reach out to me here if you’d prefer to have a private conversation.

Be blessed and be a blessing to others!

The post 6 Easy Ways to Encourage A Special Needs Family appeared first on Breaking the Confines.

How ADHD in the Classroom Affects the Child

My friend, Mandie, is a mother to three boys (one of which has ADHD) and she is a teacher at a private Christian school. So not only is she able to see things from a mother’s perspective but she also understands what it means to teach a child with ADHD.

Here are her thoughts:

*This is a generalized statement about education in general, not one specific school. We have had some really great teachers for our kids. I’m commenting on things I have seen in my own life, my children’s lives, and the lives of other students I know personally and professionally. This morning my heart was just weighed down from the week and I had to share my thoughts on students with ADD and ADHD. It’s fitting as this is ADHD Awareness month.*

I just want to say that having ADD or ADHD sucks. And I’m so over people who see it as an excuse, and I’m so over people who count things against you that are part of a medical disability.

Especially students who are trying their very best to keep up with all the papers, assignments, and busy work at a school. These kids are not lazy.

They are not trying to disrupt your class by being impulsive. They aren’t purposefully forgetting things. Their lockers aren’t unorganized because they need to “get it together”. Their brains are broken and they are coping the best they can.

Don’t assume they “need to be on meds” or they aren’t trying. You don’t just get meds and are suddenly fixed. It takes a LONG time to find the right ones and even then THEY STILL HAVE ADHD. They will always have it. It is a medical condition that affects the way their brain develops and processes information.

And guess what? They hear teachers talk to other teachers about them, they see teachers roll their eyes when they are missing another worksheet, and they know they are going to lose more points for skills they struggle with.

They know that the education system is not built for kids like them. That they aren’t “the good kids” because they can’t perform to unrealistic school and teacher standards.

And you know what else? It hurts them.

They cry every dang night about how hard school is, how they got in trouble AGAIN, how they never get whatever reward the “good” kids are getting, and how they lose recess (which by the way negatively impacts their ADHD and classroom behavior so teachers are punishing themselves).

They HATE themselves and ask why God made them this way, and they ask why is it so hard and will it ever get any better. Eventually most of them DO give up and become lazy because when they were trying and struggling IT NEVER MATTERED.

Instead of taking things away and punishing these kids, why aren’t we more supportive?

Why don’t we help them? Not just “show them grace” but look at the root problem and help them?

Not just give them the grade, I’m not saying that. Be honest with grades, but if grades are reflecting an issue, why don’t we find out the reason?

Why don’t we MAKE SURE they get recess no matter what because it helps their brains and bodies? Why is recess only for the kids that have it together?

Why don’t we send home gold stars for the things they get RIGHT?

How ADHD in the Classroom Affects the Parents

You probably think I’m just a mom who wants her kids treated special. Or that I’m overprotective of my snowflakes. Well you are wrong.

I want my kids treated how they should be treated in order to learn to cope with a disability they will have their whole lives. I don’t care if they get A’s or if teachers “like” them.

But I want them to try their best without being punished for things outside of their control. And I want them to view school as a positive opportunity and not another way they have failed.

I’d love it if my kids (and others I know) weren’t depressed and in counseling because they don’t like who they are, they don’t fit in, and they can’t keep up.

And I was that child. I was a girl in the 80’s and 90’s in school with undiagnosed ADD because GIRLS DIDN’T HAVE IT THEN.

ADHD was for boys.

I was very intelligent but I hated school because my teachers labeled me as trouble, annoying, and a “bad kid”. I hated myself because I couldn’t figure out how to be a “good kid”, how to “get it together” or how to shut up.

I never got a “1” on my report card for behavior or citizenship and spent most recesses sitting on the curb for talking in class or missing work.

The worst part is I BELIEVED THESE PEOPLE. It took YEARS of therapy and medication before I was not severely depressed and I still don’t like myself and struggle to accept God loves me.

I’m so tired, but I can not give up on my kids. I will keep pouring into them regardless of what a broken education system says to them; they are not broken individuals.

I will continue to tell them that I don’t care about their grades if I know they are trying. If they quit trying, I will know that and we will talk because lazy isn’t an option.

I will keep saying that ADD and ADHD is NOT an excuse – it just means we have to work harder to do some things and they will have to learn ways to make life work for them and learn coping skills.

What ADHD Kids Need in a Teacher

And I will fight for your kids. The ones that are diagnosed and the ones that aren’t.

As another parent AND as an educator. I will find ways for my students to learn without punishing them for things outside of their control.

I will set them up for success in the real world. And I will celebrate their victories with them. When they struggle I will keep pushing them to work hard, and I will be there when they need someone to just listen.

I’m sorry. This school year has been TOUGH; for me, my kids, my friends’ kids, and students I’ve had in class. My heart is just so heavy and saddened by watching the struggle and seeing kids full of life be so drained.

I just want them to enjoy being kids without carrying the same weight I carried until I was 30 years old. If you made it this far, thanks for letting me rant. I’ll get it together someday – or maybe I won’t.

Share Your Knowledge!

I know there are many other mothers out there who feel the same way as my friend when it comes to the struggles your child has at school. To me this post is a great opportunity to bring awareness of the learning difficulties that all children have in a school setting.

Speaking of awareness, if you are looking for ways to spread awareness this month, this post will give you some ideas on how to celebrate the causes that are near and dear to your heart!

If you know of any simple ways to help ADHD children in the classroom, share them below! Or if you have some encouraging words for the parents of ADHD kiddos, feel free to add those too. Let’s be a blessing to others by leaving little nuggets of wisdom and inspiration. It could be just the thing that a desperate heart-broken momma needs to hear.

Mandie Lincoln is a mom to three rowdy boys. She has been married to her best friend for 15 years. She works full-time with high school students and she is in college full-time to finish her bachelor’s degree in Middle-School Education: Language Arts. In her free time she likes to be outdoors with her family, or reading a good book.

The post ADHD in the Classroom | From a Mother’s Point of View appeared first on Breaking the Confines.

These truths were not found in a pamphlet in a doctor’s office or explained to me in preparation of being a special needs mom. Instead they were learned the hard, heart-wrenching way.

Maybe your ugly truths are similar to the ones discussed here. Maybe there are some that you’ve experienced that are not covered. If so, please comment below and let me and the other readers know so we can all share together.

We need each other to be successful at this parenting thing, and we gain strength when we know others have been through the same struggles that we are going through. Strength in numbers, right Mommas?!

Grieving Comes in Waves (again and again)

When you first receive the diagnosis that your child will have special needs, going through the grieving process is critical for your mental well-being. But don’t think it’s a once and done deal. It sneaks up on you at the most surprising times and you will grieve once more for your child.

It may be at the park when there are other kids around and you realize your child can’t move and climb like the others. Or you see another child with the same diagnosis and his progress is so much more advanced than your child’s development.

It could be during an IEP evaluation and there it is in black and white what someone else is saying about your child. They see your child’s weaknesses and remind you once again that your child is below the normal range in one area or another. You read it and weep.

You weep because this is not the life you wanted for your child. You weep because you can’t change the hard facts about the life your child will face and faces every day. But in your grieving also know that your child was made for a purpose and for a higher calling. “Many are the plans in the mind of a man, but it is the purpose of the Lord that will stand.” Proverbs 19: 21

Learning to Accept Your Child’s Delays

It’s never easy to see your child struggle even when it’s your “healthy” child. But a hard lesson for special needs parents is learning to accept your child just as he is; delays, weaknesses, and all.

It hard to not be jealous when you see other kiddos with the same diagnosis doing so much better than your child. It’s hard not to feel a little anger rise up in your momma bear heart and want to fight for the injustice. “Why is it that she doesn’t have to have therapy twice a week? And look at that, she’s not wearing leg or foot braces!”

Just remember you are normal to feel these jealous and angry feelings.

Give yourself grace and remember it’s all in God’s time. Remember He has already done so much for your child. Just look at how far she has come and know that this season you are in will not last forever.

Eventually your child will meet her next milestone and there will be great rejoicing!

There Will Be Lots of Low Lows and High Highs

Over the past three and a half years (counting pregnancy) there have been really low lows and really high highs. It’s a roller coaster ride of emotions over and over again. Most of the time it’s all in the same day!

The really low lows have been filled with anger, anxiety, and deep sadness for what my child has endured and has yet to endure. He’s still young enough that he doesn’t really understand how his disability sets him apart from his peers but it rips my heart in two knowing that some day he will see that difference.

It’s an overwhelming sadness when we as mothers see other children at the same age capable of doing so much more. We want to give our children the opportunities to try new things for their age like soccer, t-ball, dance or swim lessons, but most of these programs do not offer the extra assistance that our kiddos will need. Or there’s not a special needs group in the area that we live in making it seem like the option for sports is out of the question.

And then there are the really high highs. Those joyous moments when a milestone has FINALLY been reached! Or you get good news from one of the many doctors that since your child is doing so well, the check-up visits will be much farther apart from now on.

It’s in those really high times we learn to celebrate big the small things, because they are big things for our children. We know what a long road it’s been to reach those milestones. We see how hard our children work to do those normal things that most of us take for granted when we are doing them ourselves.

The high highs are the times we like to share on Facebook and Instagram how proud we are of our special needs child. And it’s encouraging and uplifting to see our friends and family celebrating with us. As a special needs parent, you need all the encouragement you can get, so share away friends!

You Will Have Feelings of Isolation

The other thing most special needs moms experience is the feeling of isolation. People just don’t know what they don’t know. And having a child with special needs puts you in a whole other world.

A world filled with endless medical bills that most people have no clue about, endless therapy appointments, doctors’ appointments, and tests.

We worry and pray there are no set backs, no regression, no surgeries. It’s a world where vacations are few and far between because so is the extra money.

We feel isolated from others because no one in our close circle checks in on how we are holding up.

There’s not a lot of date nights because that requires a sitter which requires money. And said sitter needs to be aware of our child’s limitations, food allergies, and other things to look out for.

A girl’s night out happens even less often than the date nights because honestly we are too tired to even want to go out.

Self-Preservation Comes in Many Ways

It may sound silly at first because according to the dictionary self-preservation is the protection of oneself from harm or death. But once you assume the role of a special needs mom, it’s a basic instinct to protect our sanity and our heart.

It looks different for each person, but do any of these sound familiar to you?

• Self-preservation is keeping your head down, focusing on your own little world, and trying not to be envious of other’s ability to do things, go places, and have opportunities (like a beach vacation!).
• Self-preservation is not getting offended when no one calls or texts to tell you they miss your friendship, or that they are thinking of you.
• Self-preservation is to keep trying to be a better mom and wife today and the next day because these people are your LIFE and you would die without them.
• Self-preservation is spending time together as a family, forgiving each other (most times daily), and loving each other more than we love ourselves.

You may find yourself shying away from others. And if you do, don’t feel guilty for doing what you need to do to preserve your sanity. But do make sure you have at least one person to talk to whether that’s your spouse, a best friend, or even the people in a supportive Facebook group.

You Will Have to Depend on Others

What I was not expecting when I became a special needs mom is having to depend on others for help.

My husband and I like to keep to ourselves and we don’t like to be a bother to anyone. But being the parent of a special needs child means you can’t do it alone.

While the husband is working to pay for our livelihood, someone else has to help with child care for the older sibling while I’m two hours away at doctors’ appointments.  And someone else has to help me by going to those doctors’ appointments because I’m not driving two hours with a small child and no backup!

It’s never been easy to ask for help and it’s even more frustrating when you don’t have many people willing to lend a hand. The hard lesson here (and ugly truth) is that most people don’t really want to help. So make sure you know who you can depend on because you will need outside support. 

Ways to Overcome These Ugly Truths

Count Your Blessings

Have you heard the song, “Count your blessings, name them one by one. Count your blessings, see what God has done..”

The best way to kick negative emotions/thoughts to the curb is to be grateful for what you already have. When you feel yourself going down the rabbit hole of negative self-talk, stop and think of five things to be thankful for right then.

To help with this, I’ve created a free printable that you can use to list those five things for each day of the week. Try it and see how much more positive your days and weeks will be!

Find a Facebook Support Group Specific to Your Child’s Special Needs

It’s important to connect with others who have already gone down the road you are on, so don’t be afraid to reach out for a helping hand.

I’m sure you will not find a more supportive group than the ones filled with parents that understand your pain, have been where you are, and can help with the needs of your child. There is strength in numbers and it’s what your momma heart needs to find comfort and solace knowing you are not alone!

Check on Other Special Needs Moms

I know how easy it is to get caught up in our own lives and forget to check on other people. I mean it’s not like we have tons of free time!

But sadly, there are more special needs moms out there today than there were 10-20 years ago. So it’s likely that you know personally one or two of them.

Don’t wait for them to check on you. Make it a point to check on them every few months. Put it in your calendar on your phone if you have to, because they need you too!

Share Your Knowledge with Others

Just as you were encouraged by others and their experiences, you can encourage other parents too. Maybe that means starting your own blog, or making others more aware during the awareness month for the condition your child has. Here are some ways you can bring awareness if you are needing some ideas to get started.

MAKE Time for Self Care

I know you’ve heard it a million times but I want to tell it to you again, Momma. Make time for yourself!

As parents of a special needs child you don’t have spare time lying around just waiting to be used and no one’s going to find that time for you, so be intentional and make time for YOU! It’s not being selfish.

When we are feeling more like ourselves and not the tired, cranky version, we are better capable of handling the stresses of the day and can take on our little world one small human at a time.

Need some ideas of self-care that can be done even if your short on time? Here are just a few ideas:

  Take a nap! (What?! I know, right!)

Sit outside with your favorite cup of tea/coffee/wine AND DO NOTHING!

Do some Yoga with Adriene (she is the best!)

Chat with a friend on the phone. Even better if you can make it a weekly habit!

Meditate, pray, practice deep breathing

Journal or write down your blessings for the day (practice the attitude of gratitude)

Check out this post that gives you 61 self-care ideas for moms without having to leave your home!

There’s even a free printable with the list of ideas and affirmations are included. Check out the link above!

I Want to Hear from You!

What ugly truths have you discovered in becoming a special needs mom? Please share with us because I’m sure we’ve all felt the same.

What are your favorite ways to overcome the stresses of being a special needs mom? I would love to hear them.

Comment below or send me a personal message!

The post Ugly Truths from a Special Needs Mom appeared first on Breaking the Confines.

It was such an indescribable time for me as we sat there laughing together and crying (well, okay, I was the only one crying) to have this moment in time with my girl. I remember how little she was when the first Frozen movie came out.

I remember her standing in front of the TV with her cute little self in her cute little pigtails singing her heart out to “Let It Go.” That movie was on constant replay back then. And for years, everything was all about Frozen; bedsheets, pj’s, dolls, dresses. You name it. If it had anything Frozen on it, she likely had it.

Then as the years went by and my girl continued to get a little bit older, the obsession of Frozen started to fade. There are hints of Frozen still in our house but just not as much.

So, as we sat there yesterday watching Frozen 2, I couldn’t help but think of the sweeter times gone by and how I was making a lasting memory with my baby girl. It wasn’t in the movie theater like I wanted but it was still perfect.

In the mist of being self quarantined due to the COVID-19, we celebrated life and happiness. And it was good. It was just what this over-stressed momma needed.

And I couldn’t help but see so many life lessons within the movie that I had to share with you! So without further ado, here are the lessons you can use right now to help you through whatever hard time you may be going through.

1. “My love is not fragile.”

This is such a strong and bold statement. I think it needs to be said more often to the ones we love, especially when we have been wronged. Kristoff had just sung his heart out wondering if he was enough for Anna after she left with Elsa to go the glacier called Ahtohallan.

When they were reunited, Anna tells him she’s sorry for leaving him behind. His reply was one of the most mature statements I have heard in a long time. “My love is not fragile.”

How often do we let ourselves get offended and hurt by someone else’s actions and words? What’s your normal response when you are feeling let down and your pride is bruised?

I’ll tell you my response is not this. But isn’t this what Jesus is calling us to be like as Christian wives, parents, and friends?

True love is not prideful. It is not boastful when we know we are right and our husbands are wrong (Ouch!). True love is not self seeking but seeks to build up others instead. And when we’ve been hurt by the ones we love the most, true love is strong and resilient.

True love is not fragile. Say it with me, “My love is not fragile.”

2. We Have to Keep Doing the Next Right Thing.

Man, this one hits me right in the feels. As Anna was singing in despair from the pain she was feeling, I knew that familiar ache.

It’s when you’ve been slapped in the face with yet another life altering event. A family member suddenly passes. You miscarry again and wonder if you can go on. Your child is diagnosed with cancer. We’ve all felt that pain.

You feel like you’re in that state of where you’re not fully asleep and not fully awake and you’re walking around feeling numb. For the most part, you are ready to give in to the darkness and despair and never leave.

But you have to keep going on. You have to keep living. All you need to focus on at this point is to keep doing the next right thing. Eventually, you will see the sunshine again and you will begin to appreciate the little things again.

Keep taking one step at a time. Don’t focus on the future because it’s too much to bear. Just focus on doing the next right thing. Then the next right thing. Then the next.

3. You Must Go Into the Unknown

Another great song from the movie, Frozen 2, is “Into the Unknown.” Watching Elsa sing it with such passion and really listening to the lyrics made me feel like I’ve been in her shoes many times.

It’s funny how as we become adults that we become more fearful of the unknown. We all start out as babies and toddlers venturing out into the unknown world to discover its treasures and to make sense of our place in this world.

As a child, discovering new places is an exciting adventure we can hardly wait for. We love doing different things and finding out more about ourselves.

What it is that makes up who we are? Are we musicians? Artists? Teachers? Are we lovers of knowledge? Are we athletic? Were we made for the outdoors? How will we know unless we go into the unknown and find out?

Isn’t that what this life is all about? Finding our purpose and letting our passions form us into who we were created to be. And by finding ourselves, it’s just a natural by-product that we help others as well.

The challenge I give you is to not let the callings of your desires go ignored. Don’t let fear keep you from going into the unknown. Don’t let your passions die without finding out where they will lead you. You are not alone in this journey. God will provide for you. Others will come along the way. Just look for the helpers. They will carry you into the unknown and you will be so glad you didn’t stop and let fear have it’s way.

4. Show Yourself and Be Found

I think my favorite song from Frozen 2 was “Show Yourself.” It’s at the climax of the story and we are finding out along with Elsa who she really is. She finds her true self after years of self-doubt and uncertainty. It’s the time in our lives that we all long for. To understand why we are here and know our place in this world.

To finally understand why we are so different from all the other people. To be honest, this is how I’ve felt most of my life. I didn’t seem to fit in with a particular crowd in school, nor did I want to fit in. I never wanted to pretend to be someone I’m not. It’s always been too exhausting for me.

In college it was the same. Wherever I’ve ended up in life, I just don’t seem to fit in. But early on in life, I learned to embrace this. It’s still painful at times, don’t get me wrong. I often feel lonely. But I accept this as part of who I am. I’m able to see the bright points about being so different. Like that it gives me empathy for others. I’m much more aware of others feelings than most people.

I encourage you to find yourself like Elsa did. Don’t be afraid to show who you really are to others. And by not pretending to be who you are not, you will know your place in this world. You will find yourself.

5. All Your Answers Are Found In Jesus

The whole point of Frozen 2 is to find answers. Elsa wants to know who keeps calling her. She also wants to know why she has powers.

Elsa and Anna want to know the truth about what happened long ago between the two kingdoms of Arendelle and Northuldra. They believe Ahtohallan, “the river of memory,” will reveal to them the answers. So they set on this quest to go to Ahtohallan.

In the story it is believed all the answers are found in this river full of memories. In the song about the river the question is asked, “Can you brave what you most fear? Can you face what the river knows?” It ends with saying, “When all is lost, then all is found.”

There is someone today who has all the answers to the questions we have. In John 7:37-38 Jesus says, “Let anyone who is thirsty come to me and drink. If anyone believes in me, rivers of living water will flow out from that person’s heart, as the Scripture says.”

Jesus is our river of memory. He holds all the answers. All we need to do is put our trust in him. If you are having trouble finding yourself, give it all to Jesus. When all is lost, then all is found. You will find your truest self living for him. The questions is, “Can you brave what you most fear?” Will you give it all to him?

Accept the Journey of Self-Discovery

Sometimes we are our own worst enemies. We don’t believe in ourselves and we can’t see the potential that lies within us. Sometimes we are our own villain.

Although Frozen 2 didn’t have the typical villain, it was more about discovering your true self and accepting the gifts you’ve been given. And isn’t that what living on this earth is about? We are here to discover our true selves. To find the reason we exist and then live life to the fullest using our gifts and talents to serve God and others.

In summary, remember to tell your loved ones often, “My love is not fragile.” They need to know you will always be there for them.

Keep doing the next right thing. Life is hard and it will knock you down but keep doing the next right thing. You will make it.

Don’t be afraid to go into the unknown. It is there that you will grow by facing your fears. And by journeying into the unknown you will learn more about your true self and what your purpose is on this earth.

And finally, you don’t need to worry because all your answers can be found by trusting in Jesus.

I would love to know what insights you gained from watching Frozen 2! Tell me in the comments below!

And if you’d like to read the lyrics of the songs, here is one place I found them.

The post 5 Life Lessons from Frozen 2 appeared first on Breaking the Confines.

The only thing I received was a small booklet about hydrocephalus. Within its pages was a one page list explaining what symptoms to be aware of for shunt malfunction laid out in a list format. The booklet talked about how sometimes a shunt malfunction can be very sudden and symptoms can occur quickly, sometimes in a matter of hours or days.

The booklet also explained how important it was for early treatment to avoid serious complications. As if I wasn’t worried enough already, reading this really caused me great concern. My thought was everyone who looks after my child needs this information!

So, I searched in the best place for a free printable on signs of shunt failure… Pinterest. And you know what? I did not find one printable! Then I searched Google for a printable. Nothing. I could not believe that no one had created a printable on the signs of shunt malfunction when this was such a serious topic.

That’s why today I have a gift for you! It’s a free printable listing the signs of shunt malfunction in infants, toddlers, and children. There are four pages; one for each appropriate age (infants, toddlers, and children) and one page that combines all of them together.

How Long Does a Shunt Last?

Here are some statistics on shunt malfunction:

• The average lifespan of a shunt for infants is 2 years (okay, that’s a scary thought!)
• The average lifespan of a shunt for children over the age of two is 8-10 years
• The average number of revisions is 1-2 every 10 years
• Up to 4 in 10 shunts malfunction in the first year after surgery (another disturbing fact!)

With those odds it seemed like a good idea to let all caregivers know what signs and symptoms to look for in shunt malfunction. That way I could have peace of mind when I had to leave my son with the grandparents, the babysitter, at daycare, in the church nursery, at preschool, or anywhere else that I was not.

What Complications Come from Having a Shunt?

I have researched that there are five common types of complications that arise from having a shunt.

• Obstruction – This is a partial or complete blockage in the shunt which causes shunt malfunction. The CSF fluid starts backing up in the brain causing signs of hydrocephalus. The blockage could be due to blood cells or bacteria.
• Infection –  Shunt infection is typically right after shunt surgery and is caused by contamination of the shunt. But infection can still be likely to occur even up to six months after the placement of a shunt. Treatment for these types of infections should be done immediately to avoid life-threatening illnesses or brain damage.
• Overdrainage – This occurs when the shunt allows the CSF to drain too quickly from the ventricles in the brain which could cause the ventricles to collapse, broken blood vessels, and hemorrhages. Symptoms of overdrainage are headaches.
• Underdrainage – This happens when the shunt is not draining CSF quickly enough and the fluid begins to build up in the ventricles and the symptoms of hydrocephalus recur.
• Other Complications – Although shunts are very durable, they do tend to break down eventually. Catheters can become calcified or broken off. Components of the shunt can become disengaged or fractured due to the child’s growth or the age of the shunt.

Overdrainage and underdrainage are typically addressed by adjusting the rate of the flow of the shunt valve. If your child has a programmable VP shunt, the neurosurgeon can adjust the pressure setting in his office with a magnetic programmable device.

What are the Signs of Shunt Malfunction?

For infants

The signs of shunt malfunction are:

• Enlargement of the baby’s head
• The soft spot (fontanel) is full and tense when the infant is upright and quiet
• Prominent scalp veins
• Swelling along the shunt tract
• Vomiting
• Irritability
• Sleepiness and/or hard to wake
• Downward deviation of the eyes
• Less interest in feeding
• Fever
• Redness along the shunt tract
• Seizures

For Toddlers

The signs of shunt malfunction are:

• Head enlargement
• Vomiting
• Headache
• Irritability
• Personality change
• Sleepiness and/or hard to wake
• Loss of previous abilities (sensory or motor functions)
• Loss of appetite
• Fever
• Redness or swelling along the shunt tract
• Loss of coordination or balance
• Seizures

For Children

The signs of shunt malfunction are:

• Vision problems
• Vomiting
• Headache
• Irritability and/or tiredness
• Personality change
• Loss of appetite
• Loss of coordination or balance
• Difficulty waking up or staying awake
• Decline in academic performance
• Fever
• Redness or swelling along the shunt tract
• Seizures

How Often Should a Shunt Be Checked?

Since every child’s situation is different, there is no hard and fast rule on this one. My son has a ventriculoperitoneal (VP) shunt. He was seen by his neurosurgeon every six months for the first two years and then moved to once a year after the age of two. He has had no complications with his shunt and no seizures so I assume that could be the reason why they scheduled it like that.

This question is one to discuss with your child’s neurosurgeon since he knows your child’s history.

What Precautions Should My Child Take with a Programmable VP Shunt?

Magnets and EMFs

It is a known fact that magnets can change the pressure valve setting on some VP shunts depending on the type of shunt it is. The effects could either be reversible or irreversible.

One study by NCIB proved that certain smart phones did have an effect on the programmable valves of two types of shunts. The effect was reversible on one type and irreversible on the second type.

It’s important to know the model of the programmable VP shunt your child has, and to read all guidelines before using a product with a magnet.

Here are a few guidelines for shunts:

• Use cell phones on the opposite side of the head from the shunt
• Be wary of your child using audio headsets until you have checked the manufacturer’s guidelines
• Be aware of strong magnets and keep them away from your child, especially in close proximity of the shunt
• Be alert for signs that the programmable valve has changes. Signs to watch for would be the same as those listed above.

MRIs

Each time your child has an MRI, the technician needs to know your child has a programmable shunt. After the MRI your child will need to be seen by the neurosurgeon to have the shunt checked and reprogrammed. This needs to be done within four hours after the MRI.

If there is no one available to reprogram the shunt, do not have the MRI done.

MedicAlert Jewelry

It a good idea for your child to wear a MedicAlert bracelet stating that he has hydrocephalus and the model of his programmable VP shunt.

These bracelets are affordable and a great way to let others know about your child’s condition in the event that you are not there to speak on his behalf.

For more information and to order online, visit MedicAlert’s site here.

Abdominal Surgery

If your child needs abdominal surgery, the surgeon needs to know your child has a VP shunt so that precautions can be taken with the tubing.

Physical Activities

It is not recommended to play in contact sports, martial arts, or ride rollercoasters that accelerate at a rapid pace. All of these activities should be done with extreme caution.

What Concerns Do You Have as a Parent?

Let me know what your concerns are about shunts and shunt malfunctions. And don’t forget to get your free printable so other caregivers know what signs to look for in the event that the shunt starts to malfunction.

Resources

Smartphones and Programmable Shunts

Programmable VP Shunts

Hydrocephalus and Shunts from BMJ Journals

4 in 10 Shunts Malfunction in the First Year

Lifespan for VP Shunt in Infants

VP Shunts

The post Shunt Malfunction – Know the Signs and Symptoms in Children (Free Printable Included!) appeared first on Breaking the Confines.

What is Hydrocephalus in Babies?

Hydrocephalus is the accumulation of too much cerebrospinal fluid (CSF) in the ventricles of the brain. You may have heard the term “water on the brain,” which is the same thing as hydrocephalus.

There are four ventricles in the brain that produce and house cerebrospinal fluid (CSF). When there is a normal flow of CSF, it circulates in the brain and up and down the spine. In some cases the flow is disrupted due to a blockage. The CSF starts to back up in the brain and overflow creating more and more pressure on the brain as the ventricles continue to expand due to the constant rate of CSF production.

If there is too much pressure on the brain from the cerebrospinal fluid, it could damage brain tissue and cause a range of impairments. It can impair brain function, cause vision problems and developmental delays. If left untreated or not treated timely, it could cause severe brain damage or death.

What Are the Symptoms of Hydrocephalus in Babies?

Symptoms vary depending on the person and the age of the person. The following are the signs and symptoms of hydrocephalus in babies:

• For babies whose head has not fused together, yet, their head size will be quite larger than normal.
• The soft spot (fontanel) will be tense and bulging when sitting in an upright position
• Developmental delays
• A downward deviation of the eyes (also called sunsetting eyes)
• Vomiting
• Sleepiness
• Irritability
• Poor appetite
• Seizures

What is the Main Cause of Hydrocephalus in Babies?

Hydrocephalus in babies is often present even before the baby is born. This is called congenital hydrocephalus. The cause could be a variety of factors such as:

• A genetic defect
• Spina Bifida
• Aqueductal stenosis
• Arachnoid cysts
• An infection in the mother during pregnancy
• Dandy-Walker syndrome
• Chiari malformation
• Complications from premature birth

How is Hydrocephalus in Babies Diagnosed?

Congenital hydrocephalus is often diagnosed before the baby is born through routine ultrasounds. If it is not diagnosed during pregnancy, the most common way it is diagnosed is by measuring the size of the baby’s head. Abnormal enlargement of the head is an indicator that warrants further testing.

When I had my ultrasound at 20 weeks to confirm my son had Spina Bifida, they also diagnosed him with hydrocephalus. They were able to diagnose this by measuring the size of the ventricles in his brain.

As a side note, another indicator that he had Spina Bifida was the shape of his precious baby head. A lemon shaped head is a sign of Spina Bifida although it’s not exclusive to it.

Can Hydrocephalus Go Away?

Hydrocephalus is not curable but it is manageable with timely treatment. Since it is a chronic condition, it is essential to continually follow-up with your child’s neurosurgeon and neurologist. The neurosurgeon will want to have periodic MRI’s to make sure the hydrocephalus is being controlled. The neurologist will make sure your child is meeting his developmental milestones and monitor the signs and symptoms caused by hydrocephalus such as vision problems, possible seizure activity and developmental delays.

How is Hydrocephalus Treated?

The most common treatment for hydrocephalus is the placement of a shunt which acts as a drainage system for the cerebrospinal fluid. A long, flexible tubing is placed in one of the ventricles of the brain. A one-way valve attached to the tubing regulates the pressure of the CSF flow. The valve keeps it flowing in the right direction and at an acceptable rate. Sometimes the rate of the flow will need to be adjusted which can only be done by the neurosurgeon. The long, flexible tubing runs down the neck and into either the belly or a chamber of the heart. The CSF is then absorbed into the bloodstream.

Another way to treat hydrocephalus is by having a surgery called endoscopic third ventriculostomy (ETV). This is where the neurosurgeon uses an instrument called an endoscope to poke a hole in the bottom of the third ventricle in the brain. The purpose of the hole is to allow CSF to flow through the spaces of the brain where it was once blocked. This procedure is usually a recommended alternative to shunting if the neurosurgeon thinks your child is a candidate.

To find out more about ETV, click here to download Hydrocephalus Association’s fact sheet on ETV.

Neither of these treatments will cure hydrocephalus. It is important to follow up regularly with your child’s neurosurgeon for periodic evaluations to make sure the shunt or ETV is working properly.

It is also important to be aware of complications of an ETV and shunt failure, and to see your child’s doctor right away if these symptoms do appear.

What Other Treatments Are Offered?

As mentioned earlier, it is common for there to be physical and mental delays caused by the pressure of CSF on the brain. The kinds of therapies involved include:

• Early intervention services – Please take advantage of this parents! Find out who your local intervention program is through and contact them as soon as possible. The hospital where your baby is born will be able to help you find out this information. In the state I live in, the program provided is funded by the Department of Elementary and Secondary Education. They provide services to families who have children with disabilities and developmental delays. The age range is from birth up to three years. Because of this program, my son has received all the therapies he has needed to reach his milestones.
• Physical therapy – These therapists work with the gross motor functioning such as rolling over, sitting without support, crawling, walking, strength building, balance and coordination, and flexibility exercises.
• Occupational therapy – These therapists aid the physical therapist in crawling and walking but they also help with fine motor skills, sensory issues, hand-eye coordination, social skills, and various other life skills.
• Speech/language therapy – These therapists not only help with speech and language disorders but they also help with feeding disorders. Problems with this could be with chewing the food properly, swallowing, gagging, and sensory issues with foods.

At some point your child should be referred for a vision exam to rule out any vision problems due to the pressure of the CSF behind the eyes. It is not always an issue with children who have hydrocephalus, but it is common. If the child’s vision is normal, then your child will not need to be seen regularly by an ophthalmologist.

Can Babies with Hydrocephalus Lead Normal Lives?

Although hydrocephalus can cause mental and physical developmental problems/delays, most children will lead normal lives with some limitations. Most babies with hydrocephalus will have normal intelligence.

Just as it is with all children, babies with hydrocephalus will develop at their own pace. They may be slower in reaching certain developmental milestones. But that’s okay! As long as they are receiving adequate therapy and the love and support from their parents, they will surely surpass your expectations.

What Can Parents Do to Help?

To make sure your child lives a successful life with hydrocephalus, here is a brief summary of what you can do as a parent to help your child:

• Take your child to all scheduled doctor visits.
• Make sure your child is receiving the recommended therapy to reach critical milestones:
  • Early intervention services
  • Physical therapy
  • Occupational therapy
  • Speech/language therapy
• Be aware of the signs and symptoms of shunt failure.
• Educate anyone who will be responsible for the care of your child to recognize the signs of shunt failure.
• Don’t be afraid to call your child’s doctor if you have concerns about your child’s behavior or symptoms. If for some reason you are unable to reach the doctor, seek medical care immediately.

Learn as much as you can about the signs and symptoms of shunt failure and educate those who will be taking care of your child. To help with that, I have included a FREE printable that lists the signs of shunt failure for infants, toddlers, and children. You can hand these out to anyone that will be watching your child. I recommend putting these up everywhere your child will be when not in your care; places like Grandma and Grandpa’s house, the church nursery, on your fridge for the babysitter, childcare center, pre-school. You get the picture. Everyone needs to be aware at all times. These symptoms should not be considered typical in a child with a shunt and medical attention should be sought immediately.

Share With Me!

What other questions do you have about hydrocephalus? Comment below or send me a personal message. I’d love to hear from you!

References

National Institute of Neurological Disorders and Stroke – Hydrocephalus Fact Sheet

KidsHealth – Hydrocephalus

The post Hydrocephalus in Babies – Your Most Common Questions Answered appeared first on Breaking the Confines.

Along with that is a constant need for a little extra help in the money department. Actually, a lot of help!  And at some point most parents start looking for outside assistance.

You may have heard something about filing for SSI disability for your child. But what does that even mean?

Looking for answers from the government isn’t always the easiest or the fastest. And who has time to talk with an attorney?  

Let’s take a look at your options as a parent with a disabled child. Hopefully, with your new knowledge you can make an informed decision about whether you should start the process of getting your child on SSI disability. 

What’s the difference between Social Security Disability and SSI Disability?

You may not even realize that there are two programs for disability within Social Security. Social Security disability (SSDI) is the program that you pay into when you work. I’m sure you’ve noticed the Social Security tax deduction from your paycheck. It is the same program that your retirement benefit comes from. It is also the same program that pays survivor benefits after you pass away. 

To be eligible for Social Security disability, you have to have worked and paid into the program. Each year Congress sets the money amount required that you have to earn in order to receive “credit.” Once you have earned the required credit for the quarter, then you are considered insured for that time period. 

So, obviously, a child cannot qualify for Social Security disability since they cannot work. And despite what you may have heard, a child under the age of 18 cannot receive disability benefits from a parent’s record. 

If the parent is receiving benefits under their own record such as retirement or disability, and they have a minor child, then that child could receive what is called auxiliary benefits. This means the child would be receiving a benefit because they are a minor child of the parent, not because they are disabled.  

So, how does a minor child receive disability benefits? Supplemental Security Income (also known as SSI) is a needs-based program for disabled minor children, the blind, those age 65 and older, and for disabled adults who have not worked and earned enough credits to qualify for Social Security disability. 

SSI is not based on work credits. SSI is based on your monthly income and monthly resources. Most of the time a child will have neither income or resources. Some children do receive state assistance or child support which is counted as income for the child. A resource for a child would be a bank account (such as a savings account), or trust accounts.

SSI also looks at the parents’ income and resources when a minor child is applying for benefits. The parents’ income and resources have to be below a certain limit for the minor child to potential qualify for SSI.

What Are the SSI Eligibility Requirements for a Child?

First, your child has to meet the non-medical requirements. This means not exceeding the income and resource limits for the child and the parents. 

Note: The parents’ income and resources are counted if they are living with the child. If there is only one parent in the household, then only that parent’s income and resources would apply. A step-parent’s income and resources are counted if they are living with the child.

Resource Limits

The resource limit for a child is $2000. The resource limit for the parents is $3000. 

This means that if the child has a savings account with more than $2000, the child would not qualify for SSI until the bank account fell below the limit. 

Also, the total amount of the parents’ resources must be below $3000. This includes things like bank accounts, the value of all automobiles (one vehicle is excluded from the limit), property owned but not residing on, life insurance, and other items that could be converted to cash. 

Income Limits

As stated before, income for a child could be things like child support, state government assistance, and any other monies received on a monthly basis.

Income for parents include wages, self employment, money from Social Security benefits, unemployment, workers compensation, and money from friends or relatives. 

The income limits are a little more complicated than the resource limits. Just know that most income whether it’s earned or unearned, will be used in determining eligibility.

Medical Data

Once the non-medical factors have been met, a medical determination can then be made. 

After it is determined that your family is below the income and resource limits, then a Social Security representative will collect all the medical information about your child. They will want to know what the condition is, which doctors and hospitals your child has been to, daily limitations, and other organizations that have seen your child for their condition. 

Once the information is collected and you have authorized the release of the medical records, that information is sent to the State Disability Determinations office. Once your case is there, they will collect the medical information and make a decision on whether your child meets the criteria outlined under the disability rules and regulations set forth under the Social Security laws. 

Do I Need An Attorney to File for SSI Disability?

The short answer is no. When you first file for SSI disability for your child, you will receive an initial determination. Having an attorney does not speed up the initial decision process. In fact, it could actually slow the process down. But it is your right to be represented each step of the way. If having an attorney on your case makes you feel more confident with the process, then go for it. 

In my personal opinion though, having worked in this field for almost 13 years, it’s a waste of your time and money to have an attorney at the initial level. Only you know how to answer the questions about your child’s disability. Only you know what your income and resources are. It is best that you be the one to give that information to the Social Security representative so they have the right information the first time.

I’ve seen so many errors and omissions come through on an application because the attorney did not know the answer. I’ve also encountered numerous times where the attorney had the client talk to the representative to give them the needed information. At that point, you are paying the attorney while you do all the work. 

Again, this is just my opinion, looking at it from the inside of a Social Security office.

If the initial decision made by Disability Determinations is a denial, the next step would be to file an appeal. At that point it may be in your best interest to have an attorney on your case. 

What is Included in SSI Benefits?

SSI is a monthly benefit paid on behalf of the child to the person who has physical custody. That person, who is normally a parent, is called a representative payee. They are responsible for using the money for the child’s needs. They are also responsible for reporting any changes in resources or income that could affect the amount of SSI or eligibility.

The monthly benefit amount is set by Congress every year. For the year 2019, the full monthly benefit amount is $771. This amount could be reduced based on your living arrangements and household income. 

What About Medical Insurance?

Normally, a child that is eligible for SSI will also be eligible for Medicaid from their State. 

Even if the child does not qualify for SSI, the child could still be eligible for Medicaid since Medicaid is a State program and each State has their own rules. 

To find out more information about Medicaid contact your State Medicaid office.

Note: A minor disabled child will not be eligible for Medicare, which is a federal government program. 

Okay, My Child was Approved for SSI Disability, Now What?

Reporting Responsibilities

Once your child starts receiving monthly payments, it’s important to let your local Social Security office know if there are any changes in the family’s living arrangements, income or resources. 

Also, if you or your spouse are working, you will need to report that income on a monthly basis. 

My recommendation is that you have proof of when you report any changes to the Social Security office. Proof could be a copy of a dated letter that you mailed. Be sure to write down each time you visit the office with changes and what changes you reported on that date. 

You can also report your changes by phone, but it’s a good idea to make a note of the dates you called and what you reported on that date. 

Having good records of when you reported any changes will keep you from being liable for any overpayment as long as you reported the changes in a timely manner. 

Periodic Reviews

Social Security is required to do periodic updates of your living arrangements, income and resources. Make sure you follow-up with them in a timely manner to answer their questions. By not doing so, your child’s benefits could be suspended until you give them the information they need.

They also do medical reviews of your child. It is hard to say how often medical reviews will be done. It depends on the severity of your child’s condition as to when the review will take place. 

Before your child turns age 18, a medical review will need to be done. This review is to determine if the child meets the requirements for being disabled under the adult criteria.

At that point a Social Security representative will also determine if your child will still need a representative payee since your child will legally be an adult at 18. The representative will likely need to speak with your child in person to make that determination. 

At age 18, SSI considers your child an adult so the information about living arrangements, income and resources will change. SSI will no longer consider the parents’ income and resources. The program will only consider the income and resources of your child and their living arrangements. Living arrangements just means where your child resides, with whom, and who pays for your child’s food and shelter costs. 

Note: There is another program for children age 18 and older. This program is called Childhood Disability Benefits (CDB). There are a lot of factors to consider in determining the eligibility of these benefits but it may be another option to keep in mind. This is a benefit available to a child of a person that is receiving retirement or disability benefits, and the child is determined to be disabled under the adult criteria before the age of 22. If the parent is deceased, the child could still be potentially eligible.

In Conclusion

I can’t think of anything worse as a time suck than filling out paperwork. And when it involves the government, reading and understanding their forms can make your head spin. I hope this has cleared up the confusion around Social Security disability, SSI, and what SSI is all about. 

If you think you are ready to start the task of filing for SSI disability, you can go here to start the process. 

There is not a SSI application online that you can fill out for a disabled minor child. You will need to call the Social Security Administration to make an appointment. The application process can be done by phone or in person but you first have to make an appointment. 

You can complete the Child Disability Report form online which will help speed up the interview process. Again the link for that is found here.

To get even more detailed information about the SSI program, please refer to this publication. 

What are your thoughts/feelings about filing for SSI? Are you intimidated by the process? What other information do you feel you need in order to make the decision on whether to file for SSI or not? I would love to hear from you!

The post SSI Disability – Is There SSI for Children? appeared first on Breaking the Confines.

It’s the perfect way to say goodbye to summer and hello to my old friend, fall, whom I haven’t seen in a while. It’s like slipping on my favorite pair of slippers, warming myself with some hot apple cider and sitting down with a life long friend to reminisce and laugh about the good and sometimes the not so good times that we affectionately call this wonderful life. That’s how fall feels to me.

Which is why I think it’s the perfect time to remind ourselves and others the wonders of Spina Bifida. Before we head into the month of thanksgiving, October is a great month to celebrate our differences and bring awareness to the uniqueness in all of us. Not only is October Spina Bifida Awareness Month, but it’s also Down Syndrome Awareness Month and Disability Awareness Month.

So what are some ways that you can bring awareness to your community about Spina Bifida and cultivate a community of acceptance for those living with Spina Bifida?

Here are 10 ways to promote awareness in your community. Hopefully, this will spur some ideas of your own. Be sure to share them with us at the end of this post!

1. Share Facebook Memes from Spina Bifida Association

So, this is the easiest (and personally my favorite) way to promote Spina Bifida awareness. Share Facebook memes from the Spina Bifida Association’s page. Or maybe you follow another Spina Bifida group that you could share their memes on your own Facebook page. It’s a great way to reach a large number of people to share interesting facts about Spina Bifida. You could also make your own memes to show how Spina Bifida has affected your child.

2. Coordinate a School (or Workplace) Spina Bifida Awareness Day

Talk with your child’s school about having a special day to promote Spina Bifida. Have a pajama day, or wear two different types of shoes, or everyone wears teal or yellow. Spina Bifida’s ribbon color is yellow so you could also give out yellow ribbons for your child’s class. See if your child could talk to his or her class on that day to explain what Spina Bifida means and how it affects them. If your Spina Bifida child is too young for school, maybe big brother or sister would be excited to have a show and tell day. They could even read a book to the class to explain what Spina Bifida is.

3. Walk-N-Roll for Spina Bifida

Participate in a Walk-N-Roll in your area.This is Spina Bifida Associations biggest fundraiser for community programs and national research, education and support.* If you don’t have one nearby, you can create your own! You can register for My Walk-N-Roll for Spina Bifida and learn more about creating a special day in your community. Invite friends, family, and neighbors to join your team and have a fun time supporting a great cause.

4. Set Up a Display at Your Local Library

This doesn’t have to be anything fancy. It could be a printout of a picture of your child with some interesting facts about Spina Bifida and fun facts about your child’s likes and favorite things to do. This is a great way of making it personable and more interesting to others when learning about a condition they know nothing about.

5. Join Team Spina Bifida

If your passion is running, cycling, competing in marathons or other athletic events, consider joining Team Spina Bifida to raise awareness and funds for Spina Bifida. You can choose your own event and the minimum amount of money you want to fundraise. In return, they will provide you a Team Spina Bifida shirt and some other cool goodies to make your event a success.

6. Share Your Story!

Don’t forget the best way of promoting Spina Bifida awareness is by sharing YOUR story. Share on your choice of social media platform. You can also email Spina Bifida Association at communications@sbaa.org and you may find your story on their website or social platform.

7. Coordinate a Spina Bifida Awareness Fundraising Event

Have a bake sale or a lemonade stand. This would be a great opportunity to team up with another family who wants to promote the disability their family is experiencing as well. You could set up a booth outside of your favorite store to sell some baked goods and promote that all proceeds are going to your local Spina Bifida chapter. Make sure to include a small handout or card explaining what Spina Bifida is. Or if you want to start out small, start one in your own neighborhood! It would be a great way to meet your neighbors while enjoying the cooler temps!

8. Team Up with a Group that is Advocating Disability Awareness Month

In our little town, this time each year an insurance agent and his team puts on a Disability Awareness Day by providing a meal, a small pumpkin patch, pumpkin painting, and games. It’s open to everyone and it’s been growing the past three years. Find someone in your area that you could team up with and promote Spina Bifida Awareness Month.

9. Donate Books to Your Hospital for NICU or PICU Kiddos

Check with your local bookstore to see if they would be interested in donating some books to the sick children in your local hospital or the hospital where your child is treated for Spina Bifida. If you’re having a hard time finding a place that will donate books, you could donate a book or two to your child’s doctor’s office or dentist office. Make some sticker labels to stick to the inside and say something like “Spina Bifida Awareness Month is October. Spread kindness everywhere!” If you’re looking for a book to share, this one would be a good one.

10. Spread Kindness and Your Message

Pay for the meal behind you in the drive-through and leave a card about October being Spina Bifida Awareness Month. Who says you have to wait until Christmas to spread kindness to others? Leave a gift card (or some chocolate!) for the postman in your mailbox with a card about Spina Bifida Awareness Month. Give something small to your child’s bus driver like a bottle of water, a pack of gum, or even a hand drawn picture from your child. Tell them thank you for their service and mention that you are celebrating Spina Bifida Awareness Month.

What’s Next?

Hopefully, you have been inspired to take action to bring about Spina Bifida awareness even if it’s in a small way. This is a great month to celebrate our differences and by sharing may we all realize being unique is what makes life exciting and beautiful. Because how boring it would be if we were all the same?!

Don’t forget to share your ideas of promoting Spina Bifida Awareness Month. I’d love to hear them!

If you would like to leave a personal message, contact me and let’s chat!

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*Spina Bifida Association’s webpage

The post 10 Ways to Prepare for Spina Bifida Awareness Month appeared first on Breaking the Confines.